Way behind SORRY!!! Good News

So Tuesday the 20th we went back to the specialist to get the results of the kidney biopsy...

Brody has Minimal Change Disease. In other word is it where for no reason your body starts to attack itself and this disease attacks the kidneys. We hope that since this disease is so rare something like 1 in 300,000 that we will also be lucky and he will be one that out grows it before he hits adulthood. This was also the least sever on the list of the things they where testing for.

So we started treatment which is a course of steroids that in return for killing all the bad things it also makes is immunity to other things lower. So for the next 1 to 3 months we might not be going to many places. And we will also be testing his urine daily for along time. But hopefully when we go back to the specialist in February that we will get more good news that this is working and that we will not have to go with the stronger stuff.

Home

We are home and so far doing well. The hardest part is keeping him down and not running all over the house. It was a LONG night with its ups and downs as the doctor told us that night time is always the hardest time of the day for the little guys. In the early morning hours I really couldn't tell you exactly when but before the sun was up they came in for the 4th time in 24hours to draw blood and test it. And then came back in and started to wake him up and give me a lot of attention. Never a word was said to me as there was something wrong or not. But to come to find out I guess his blood level had dropped and they had to take another sample and luckly it came back up on its own or we would have been stuck in that hospital for more then just one day. The nurses where wonderful even at 2 am quietly asking me did he pee? But we are so glad to be home where the beds are just alittle softer and we can rest. We still have a long road and this is just the begining. We are scheaduled to go in and get the results of the tests Tuesday morning and we will let everyone know as soon as we can.

Thank you so much to all the wonderful people in our life who have already helped us so much. With watching kids or just playing with them so our hands would be free.

Brody Update

So this weekend was one of the longest ever. I called the doctor this morning and we have a date but no time. He is rescheduled for surgery on Tuesday the 13th. When I find out more I will let you know.



*** we have a time it will be around 1:30

We also get results the next Tuesday. We will let you all know when we do.

The latest on Brody

Today we packed everything up got the babysitter ready and left for the Children's Hospital. When we got there Brody had fallen asleep in the car so I grabbed him and took him in he said he was cold but it was outside was in the 70's. We got in and checked in and I felt him and he was burning up. They took is temperature and it was 103.0 so we where sent home. And told to go see our pediatrician and figure out why he was having a fever. So this is where we are now. The biopsy has been put off until we get him over this whatever it is.
We are going to the doctor at 4 and will let you know what we find out then.




In other news this was a huge blessing in decise as today we walk in there thinking that we only have to pay one amount and where told that it was going to be almost 2000 dollars. Wow! But now that it wont be until after the 1st we will be on a new health insurance plan and it will only be 200 dollars. I am so greatful for a loveing watchful Heavenly Father.

Merry Christmas......

A day late...

We hope everyone had a wonderful family and friends filled day.. I know we have been very blessed to have such great family and friends that surround us. We honestly don't know what we would do without them.


* Brody update.... We have been actually scheduled a time at Dell's Children's Hospital. Here in Austin for the Biopsy we knew it was going to be on Tuesday but didn't know when. It will be at 2 in the afternoon and we will be staying the night there as they have to put him to sleep to do it. We are hopeing that we will all be home Wednesday afternoon if there is no complications. Then we will be doing pretty much nothing. As he is not aloud to move or do anything more then go to the bathroom for the next 10 days. As if the kidney is moved to much after the biopsy it could start bleeding. And we don't want that. Thank you so much for all your prayers and offers to watch children. We really apprecitate it.

Have a happy and safe Holiday Season ...

Update on Brody

We just got back from the Specialist Office. Dr Berry. The blood work didn't show any one thing so they have scheduled Brody to go in for a Kidney Biopsy Tuesday the 30th.

Thank you so much for all your prayers and help watching of our other little ones so that both Robert and I could be at these appointments.