Brody has Minimal Change Disease. In other word is it where for no reason your body starts to attack itself and this disease attacks the kidneys. We hope that since this disease is so rare something like 1 in 300,000 that we will also be lucky and he will be one that out grows it before he hits adulthood. This was also the least sever on the list of the things they where testing for.
So we started treatment which is a course of steroids that in return for killing all the bad things it also makes is immunity to other things lower. So for the next 1 to 3 months we might not be going to many places. And we will also be testing his urine daily for along time. But hopefully when we go back to the specialist in February that we will get more good news that this is working and that we will not have to go with the stronger stuff.
5 comments:
Hugs Julia!!! Just wanted to let you know that you were missed today! Please let us know what we can do to help you all out!!! Hugs!!!
Cute blog, guys! We are SO happy that Brody is okay! Love to you all!
Love,
The Hansen Fam
I'm glad that he has something that can be treated and hopefully he will outgrow it.
I'm glad you now know what it is! Not knowing is awful! Still, you have a long road ahead of you. But you're strong and so is Brody! You guys will get through this and end up even stronger!! Love ya!
Abby just got diagnosed with Dermatomyositis where who body is attacking her muscles and skin. She's taking the steriods too. What's up with all the autoimmune diseases all of the sudden? I'm glad that found what was wrong with Brody and that he'll be ok.
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